Hi Tess~
Great to hear from you. I was actually going to send you an email this afternoon with the latest and greatest tribute report. Please find attached a list of names and addresses of those who have sent in gifts since August 29th. We are officially up to $19,371!
Holly is going to meet with Page and I in October to talk about what the next steps are for making this Garden happen.
As I have been thinking alot about my son, as I always do, the pain never goes away. It doesn't even get less........there are times when I can function for longer periods of time without crying or being sad but the pain is the same..always so strong...takes my breath away.
I know that this is a time for great Faith . Faith that we will be OK, that Cash is OK, that we will have kids filling up our home, making noise, making a mess ,making us crazy. Our dear friend Jim robbins came to visit this weekend. He has 3 kids. Jim was telling us about Soccer days in Boseman. How crazy it can get and how much fun it is to watch the little ones all run in a herd around the soccer field. I just thought it sounded like Heaven. Page and I have to have so much Faith that we will have that herd of kids running around and that Cashie will be with us always. Sometimes I just want to drive up to an orphanage(or wherever kids that need families are) and fill my truck, and fill the house with noises, with love, with laughter.
I spoke with Janet from Baltimore on Sat nite. She is the Mom to Cullum. They were on NPR b/c they want to raise awareness about SMA. Cullum has Type 1 SMA, just like Cash. He is 19 months old. They are trying all these alternative therapies for him. He is showing great progress. It was amazing to talk to another Mom about SMA. I have really just put it out of my line of vision. I have been so Angry at SMA. It's very scary to think about getting pregnant again. I don't feel strong at all in that area. Not yet. If you are related to Page or Myself and thinking about having kids....do the genetic testing for SMA. Because it runs in our families.
You know, I was telling Page the other day that I rarely get lonely, even when I was working by myself for all those years gardening. I have always really enjoyed my own company. Then last year I was pregnant and I would talk to Cashie all day long and I certainly didn't feel lonely.
Now, I feel lonely without Cashie. I miss him so much. Feeding him, changing his diaps, snuggling him all day long. I miss my baby. I want him back. I need to have patience.
I need a miracle.
So for anyone that is reading....could you please take a minute and just ask whatever it is you may believe in for a miracle for Page and I.
Thank you
Cash's Mommy
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment